Title: Special Event Assistant

Reports to: Associate Director, Regional Development

*Applications without a cover letter will not be considered*

About HDSA:

The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization supporting the Huntington’s community. One powerful mission drives us: to improve the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families. In the battle against Huntington’s disease, no one fights alone.

As we stand on the cusp of a historic breakthrough, the first potential disease-modifying therapies for Huntington’s disease, HDSA is expanding to meet this moment with strength, vision, and compassion.

We are actively building a bold, forward-looking strategic plan to ensure our community is fully supported through the next chapter in research, access, and care.

We are looking for passionate, mission-aligned individuals who are committed to making a lasting impact. Our growing team is collaborative, purpose-driven, and deeply respectful of the families we serve. If you value honesty, integrity, meaningful work, and are excited to help shape the financial growth and future of HDSA looking to grow with us, we’d like to hear from you.

HDSA operates with an annual budget of approximately $12 million, supporting a robust portfolio of national programs. We steward a diversified funding base of philanthropic contributions, grants, corporate sponsorships, and events. In addition, we manage an investment and banking portfolio of $10 million designed to ensure long-term sustainability and strategic growth.

Position Description:

We are seeking a detail oriented and dynamic Special Events Assistant to support our Regional Development Officers and volunteers in planning and executing events. This role is primarily administrative and logistical, providing essential behind-the-scenes support to ensure the success of fundraising events, donor engagements and other key initiatives.

The ideal candidate will have experience producing high-quality event collateral (emails, signage, programs) preparing donor and sponsor reports, and managing event logistics from pre-event planning to post event wrap up. Strong organizational skills, excellent communication and the ability to manage multiple deadlines are essential.

Key Responsibilities:

Ensure that all event, donor, and volunteer information is captured in the HDSA donor database.
Generate event reports to support volunteer event management.
Ensure post-event financial reports and donated goods & services reports are submitted in a timely manner.
Draft and distribute approved e-blasts to promote Regional/Chapter/Affiliate events and activities.
Manage the collection of Chapter/Affiliate board rosters and board meeting minutes.
Order pre-event collateral, including event kits and t-shirts.
Develop a personal commitment and understanding of Huntington’s disease and those who have it, and be able to articulate the programs of HDSA that need support.

Qualifications:

Associate’s degree required; Bachelor’s degree from an accredited four-year college or university preferred.
Minimum of two years providing administrative support to a multi-member remote team. Experience in a fundraising or sales environment a plus.
Demonstrated ability to multi-task effectively with exceptional organizational and communication skills. Understanding of volunteer-led organizations.
Must be a self-starter with the right levels of flexibility and awareness, in accomplishing the responsibilities of the position and meet deadlines, attention to detail, and good humor.
Mastery of Microsoft Office suite and a strong understanding of database functionality, such as fundraising/CRM software.
Consistently apply the society’s organizational values of HD Families First, Honesty & Integrity Always, Respect, and Collaboration in everything we do.

Why Join Us?:

We offer a mission-driven culture and highly supportive work environment. HDSA is an equal opportunity employer and committed to diversity. We’re proud to support our team with a comprehensive and generous benefits package that prioritizes well-being, security, and time to recharge:

Full Coverage Healthcare:

100% premiums covered for employees enrolled in our baseline medical, dental, and vision plans.
70% of premiums covered for enrolled dependents under the same plans.

Protection & Peace of Mind:

We fully cover short-term and long-term disability insurance.
100% of the premium paid for life insurance for all employees.

Retirement Savings:

5% company contribution to your 403(b) retirement plan- no match required, after just 1 year of employment.

Paid Time Off + Company-wide breaks:

Generous PTO package.
Enjoy one full week off in July and one full week off in December, in addition to standard PTO.

Job Type: Full-time

Pay: $42,000.00 - $46,000.00 per year

Benefits:

Dental insurance
Health insurance
Retirement plan

Application Question(s):

Have you worked with a donor or event management database (DonorView, Salesforce, Raiser’s Edge, or similar)?
Have you created post-event or donor reports in a previous role?
Have you been responsible for ordering or organizing event materials such as kits, t-shirts or signage?

Work Location: Remote

Huntington's Disease Society of America (HDSA)

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Special Events Assistant